We found a neurosurgeon and I'm scheduled for LOTS of tests next week. We reconvene with the surgeon the following week when we'll discuss the results of the tests, which should pinpoint what part of the shunt is malfunctioning, if it is indeed malfunctioning. Hmmm. That will be the pivoting point in determining my hair fashion (or lack of it) for the next six months. But my Mom comes to the recue...yay!...after that she's going to drive me into New York (I'm grounded from air travel due to my elevated intracranial pressure) for some slice and dice by Dr. Chainsaw, which is way overdue and, needless to say, been problematic. So, I'll be squeezing a New York road trip in there somewhere, but New York with my Mom ain't so bad! Speaking of which, I'm headed out there for Turkey. Happy Thanksgiving everyone!
This site is dedicated to the ongoing journey of emotional and spiritual growth in the face of physical deterioration. Join Susan S. in her day-to-day battles where victories are celebrated and defeats are sorrowfully appreciated for their lessons.
Showing posts with label Holidays. Show all posts
Showing posts with label Holidays. Show all posts
Tuesday, November 20, 2007
Who's a Turkey?
Posted by
Susan S.
at
11:25 PM
0
comments
Labels: Holidays, Medical Travel, Osteomyelitis
Friday, September 21, 2007
Yom Kippur 2007
Stepdad and I have returned from NY back to his home about four hours away from my home. We are thrilled to all be together, my husband, daughter, mother, stepfather, and grandmother, for the rapidly approaching Yom Kippur holiday. The day and a half driving trip back was difficult in that my healing pain has been off the charts. This pain is tolerable, however, since many of my symptoms from bone infection encroaching on strategic nerves have dramatically subsided. The horrible pain in my right shoulder blade is almost gone and my failing vision has improved to the point where I may even be able to reduce my screen fonts to sizes which would provide for longer life expectancies of several trees when it comes to printing time. While the Yom Kippur holiday focuses on people asking God for forgiveness for all the crummy things they have done to Her over the past year, it is customary to clear up any misunderstandings between people before embarking upon this endeavor. In this spirit, as I watch the sun setting down below the beautiful mountains that God is allowing me to see this year on the eve of Yom Kippur, I humbly ask all who know me for forgiveness for anything bad that I have caused them, either by direct actions or inadvertent means. Thank you and to all, and happy and healthy year.
Posted by
Susan S.
at
3:50 AM
0
comments
Labels: Holidays
Subscribe to:
Posts (Atom)


Ehlers-Danlos Syndrome
Hyperinsulinemic Hypoglycemia with Nesidioblastosis
Spinal Anomolies including: Cervical Stenosis with decreased posterior flow at C4 to C6, Herniated Nucleus Pulposus from C4 to C6 and at L4-L5, Retroodontoid Pannus
Idiopathic Intracranial Hypertension
Chronic Migraine with Atypical Visual Aura and Cluster Features
Atypical Facial Pain
Fibromyalgia
Sensitization Phenomenon (increased response of brain or spinal cord to pain)
Partial Complex Seizures
Possible Neurocardiogenic Syncope
Restless Leg Syndrome
Orthostatic Hypotension
Osteomyelites (nonsuppurative with osteonecrosis of mandibular and maxillary bones) - LINK 1
Osteomyelites (nonsuppurative with osteonecrosis of mandibular and maxillary bones) - LINK 2
Hashimoto’s Disease - LINK 1
Hashimoto’s Disease - LINK 2
Dumping Syndrome
Hypercoagualable State
Latent Strabismus and Monocular Diploplia - LINK 1
Latent Strabismus and Monocular Diploplia - LINK 2
Temporomandibular Joint Syndrome - LINK 1
Temporomandibular Joint Syndrome - LINK 2
Bipolar Disorder
Obesity - LINK 1
Obesity - LINK 2
Gastritis
Hyperinsulinemic Hypoglycemia with Nesidioblastosis
Spinal Anomolies including: Cervical Stenosis with decreased posterior flow at C4 to C6, Herniated Nucleus Pulposus from C4 to C6 and at L4-L5, Retroodontoid Pannus
Idiopathic Intracranial Hypertension
Chronic Migraine with Atypical Visual Aura and Cluster Features
Atypical Facial Pain
Fibromyalgia
Sensitization Phenomenon (increased response of brain or spinal cord to pain)
Partial Complex Seizures
Possible Neurocardiogenic Syncope
Restless Leg Syndrome
Orthostatic Hypotension
Osteomyelites (nonsuppurative with osteonecrosis of mandibular and maxillary bones) - LINK 1
Osteomyelites (nonsuppurative with osteonecrosis of mandibular and maxillary bones) - LINK 2
Hashimoto’s Disease - LINK 1
Hashimoto’s Disease - LINK 2
Dumping Syndrome
Hypercoagualable State
Latent Strabismus and Monocular Diploplia - LINK 1
Latent Strabismus and Monocular Diploplia - LINK 2
Temporomandibular Joint Syndrome - LINK 1
Temporomandibular Joint Syndrome - LINK 2
Bipolar Disorder
Obesity - LINK 1
Obesity - LINK 2
Gastritis